Archive for the ‘Aphasia Support Groups’ Category

Aphasia Camp Northwest 2016

June 17, 2016

Aphasia Camp Northwest 2016 registration is open. I’ve never been there, but it looks like a lot of fun. From Aphasia Network below, find more information by clicking on the link.

“The Aphasia Network has opened registration for Aphasia Camp Northwest 2016 at Camp Magruder in Rockaway Beach, OR.

  •  Weekend Camp is Saturday, August 27th at 10am through Monday, August 29th at 11am.
  •  This year, we are offering Day Camp on both Saturday and Sunday, 10am up to 9pm.

Information, as well as an application and a list of frequently asked questions can be found on the website http://www.AphasiaNetwork.org. Learn more, watch a video or read stories from past campers. If you have additional questions, about camp, email us at camp@aphasianetwork.org or call Gabrielle at (503) 314-5462 or Suzanne at (503) 577-1282.” (Aphasia Network)

 

Contributed by Carol Cline Schultz, author of Crossing the Void: My Aphasic Journey

Carol@CrossingTheVoid.com

Aphasia Recovery Connection

January 10, 2015

Aphasia recovery requires networking among survivors and caregivers. I was impressed with Aphasia Recovery Connection, an on-line support group organization. It is written by two young aphasic people with help from their supporters. The written format is simple for those who’s aphasia leaves them with reading impairment. Video presentations address the need to communicate with those who cannot read at all. Extras also include announcements of aphasia conferences and cruises. Caregivers and survivors, check out their site and see if you agree with me.

You Can Never Go Back

August 22, 2014

“You can never go back to where you have never been,” was my father’s adage. Coming out of aphasia, one hopes to go back to where you have been, to be able to speak and read and write again that you could before. But the reality with a brain injury is that you can never go back. You can never regain the same level of language dexterity you had before your aphasia stroke. If any of you survivors out there find it differently, please let me know. I would love to share your experience.

The degree of recovery was a subject of discussion among several of us at a support group meeting. With great effort, progress can be made. Some recovery to the point that their deficiencies are not noticeable to most people. But we know. We know that with every day, our recovery is one of compensation.

Stroke Connection Summer 2014 magazine discusses the dilemma in the article Making Life Bigger than Aphasia by Jon Caswell.

The article opens with, “At some point during their recovery, stroke survivors and caregivers realize that life goes on and they have to fit into it. The world doesn’t reshape itself to fit their needs. Aphasia ia a deficit that may have to be worked around, despite the best efforts of survivors and speech-language pathologists.”

Read the article and learn about Life Participation Approach to Aphasia (LPAA), a comprehensive  service that goes beyond a few weeks of speech therapy.  LPAA centers are established in several communities. Perhaps your community could be the next.

The important thing to remember is that even though you can’t go back to where you have been, it is not the end of the road. It is simply a new beginning.

Carol Cline Schultz, author of “Crossing the Void: My Aphasic Journey”. Carol@CrossingtheVoid.com

 

 

People with Aphasia for People with Aphasia from Connect

August 14, 2014

Aphasia survivors helping each other are instrumental in recovery, as is evident in this report  from Connect (www.ukconnect.org), the communication disability network based in the UK:

“Aphasia can affect the ability to read, write, speak or use numbers. It affects each person differently. It can affect anyone at any time and at any age. When aphasia strikes it changes people’s lives in an instant. Aphasia can lead to isolation, the breakdown of relationships and at times depression.  At Connect we make sure that people with aphasia are at the centre of everything we do. They act as trustees, trainers, advisors, staff members, volunteers, interviewers, service deliverers, co-facilitators, activist and hub members. Connect has a very strong peer-led philosophy. We work in equal partnership with people with aphasia, to develop and offer services that are run by people with aphasia for people with aphasia. An example of our peer-led philosophy in practice is our weekly drop-ins at our London centre, our befriending schemes and our special interests groups.

Below Carol tells her story. Carol Griffiths had a stroke in 2007 when she was 42. She was leading a busy life as a MENCAP carer, teaching assistant and foster mother.”

“One day out of the blue I had a stroke and in an instant and my ability to talk was wiped out. I felt so isolated and confused because I could not communicate with people. I felt depressed and very anxious about how“Aphasia can affect the ability to read, write, speak or use numbers. It affects each person differently. It can affect anyone at any time and at any age. When aphasia strikes it changes people’s lives in an instant. Aphasia can lead to isolation, the breakdown of relationships and at times depression.  At Connect we make sure that people with aphasia are at the centre of everything we do. They act as trustees, trainers, advisors, staff members, volunteers, interviewers, service deliverers, co-facilitators, activist and hub members. Connect has a very strong peer-led philosophy. We work in equal partnership with people with aphasia, to develop and offer services that are run by people with aphasia for people with aphasia. An example of our peer-led philosophy in practice is our weekly drop-ins at our London centre, our befriending schemes and our special interests groups. I could parent my children properly. I lost most of my old friends, as people lost patience with me. I felt trapped, with my confidence destroyed. I couldn’t carry on with my old life.

Connect helped me to come to terms with what had happened to me. They helped me understand that I didn’t have to go through this process alone. Step by step with diligence and patience they taught me how to communicate and recover my life back. Meeting other people who know what aphasia is like is the key to feeling like I can be myself again. It also is the key to unlocking my potential in helping others and being independent. That’s what Connect and the Connect Cornwall project is all about. With new hope and confidence I wanted a new purpose in life and to ensure that people didn’t become isolated like I did. That’s why I trained to be a Connect befriender.

 

The first person I visited was Kay. She lived by herself after having aphasia for four years and had little therapy or support. I have helped encourage her to communicate again and in our own way, we chatted about lots of things. I got huge satisfaction from seeing Kay blossom and was delighted when she felt confident enough to train to be a befriender like me.

Since befriending, I’ve gone from strength to strength. I have recently qualified as a teacher and am due to start work soon. Imagine that! I now love standing up and talking to people. When I first came to Connect I couldn’t say ‘Boo’ to a goose.”

 

As reported from Connect.

Shared by Carol Cline Schultz, author. “Crossing the Void: My Aphasic Journey”, Carol@CrossingtheVoid.com

What is Aphasia?

July 5, 2014

Help an aphasic person by helping others feel more comfortable while interacting with them. The American Stroke Association, issued two posters about aphasia and how to communicate through speechless barriers.  Download and share these handouts with family members, caregivers, advocates and medical support personnel.

Contributed from the Stroke Connection Summer 2014 online magazine.

Learn more at Stroke Association.org/aphasia and Aphasia.org

Carol Cline Schultz, Author

Crossing the Void: My Aphasic Journey

www.CrossingTheVoid.com

 

Aphasia Recovery and Stroke Support Groups

April 8, 2013

Aphasia stroke caregiver and survivor alike benefit from associating with a support group. Live too far away to join a group? Power up your computer and link to an online support group. One I recommend is http://www.strokenetwork.org/. There, you will find resources, chat rooms, blogs, expert advice, a bookshop and a monthly newsletter that is sure to include an article of your interest.

The newsletter this month featured an aphasia support group. In it, Claudia Warner described the “Friends of Aphasia” activities that encouraged communication skills and social interaction. For more detail, read the article, “The Juggling Caregiver” by Claudia R. Warner:

http://www.strokenetwork.org/newsletter/juggler/juggler2013-04.htm

Browse all the Stroke Network Newsletters:

http://www.strokenet.info/newslette/month/

Carol Cline Schultz, Author

Crossing the Void: My Aphasic Journey

www.CrossingTheVoid.com