Archive for the ‘Caregiving’ Category

Aging and Disability Resources

November 13, 2015

Are you disabled by aphasia stroke? Did you know there is an “Aging and Disability Resources” office in your county? Call 1-800-677-1116 or go to http://www.eldercare.gov to find the local location.

From Leslie Rigg, representative of the Northwest Regional Council, the Peace Stroke Support Group learned ADR serves as a resource hub of information about in-home care, medical information, caregiver support, housing, residential care options and general resources. Need to know about property tax exemption, a power of attorney, a living well, an advance directive, transportation, disabilities parking permits . . . Give them a try. They should be able to inform you and refer you to the right people.

Carol Cline Schultz, author Crossing the Void: My Aphasic Journey. Carol@CrossingTheVoid.com

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“Aphasia” (the movie) and the “when” word!

February 20, 2015

Carl McIntyre’s movie, “Aphasia” is a winner. One out of 250 people in the United Stated have aphasia, but very few have heard of it. Have you? Do you feel awkward when you come across a brain impaired person who cannot speak? Wonder if they are intelligent? Wonder if they understood you? Wish you understood them? Wish you could help them, but don’t know where to begin? Then watch the movie “Aphasia”.

I first watched “Aphasia” with other aphasic survivors at a University of Washington support group meeting. The star, Carl McIntyre, plays himself documenting his aphasic stroke. From the onset, the audience is brought into the predicaments he faced – from pathos to triumph, tears to laughter. Each of us had been there; each empathetic to his plight.

When Carl’s is not comfortable listening to the babbling din in a large group, we remember. The undecipherable word sounds in his empty language center had been the same for us.

When Carl is hurtfully ridiculed because of his brain impairment, we feel his pain. Even unintentional slights were insults.

When Carl has difficulty operating a phone, we remember how difficult it had been for us.

When credit agencies call about past due payments, we share his anxiety. How will his family manage without his income?

When Carl drives through a drive-by to order a Frosty only to remember he is not able to speak, we chuckle.  On similar occasion we’d forgotten our speechlessness and had been rudely reminded of our limits.

When the word “when” shows its face on a flash card presented to Carl by his speech therapist, we hold our breath and I grimace. At this point, I pause . . . until the next post when I will expound on the troublesome “when” word.

In the meantime, check out Carl McIntyre. Find a copy of “Aphasia”. Watch it. Share it with your family, groups and medical personnel who come into contact with aphasic people.  Spread the word.

 

Contributed by Carol Cline Schultz, author of Crossing the Void: My Aphasic Journey. Carol@CrossingtheVoid.com

Caregivers and Stroke Recovery

February 4, 2015

When aphasia and paralysis struck Mark McEwen from a stroke, his wife Denise became his caregiver. Her advice to others is that it’s best to ignore naysayers. Be inspired by reading the article “Wife of popular television personality shares what she’s learned as a caregiver”. It was presented in the American Heart Association “Your Winter 2015 Issue”.

Connect to the American Heart Association by going to www.strokeassociation.org/strokeconnection  1-888-478-76563

Shared by Carol Cline Schultz, author of “Crossing the Void: My Aphasic Journey”. Carol@CrossingtheVoid.com